to the Medullary Thyroid Carcinoma Web Site
Watch Videos of MTC Journey Stories
Thyroid Cancer Basics - Free 50-page Handbook: English Spanish Chinese
purpose of this site is to provide a centralized source of current
information about medullary thyroid carcinoma (MTC) for patients
and their families.
Most of the
contributors to this site are MTC patients or “meddies.” We hope
that our shared experiences and knowledge from years, sometimes
decades, of living with MTC will be helpful and encouraging to
anyone looking for answers and support. Many of us participate
in an international e-mail support group for people with MTC and
the rare nature of this disease, it is natural to feel a sense
of urgency and a fear of the unknown, especially when we are first
diagnosed. When we meet another meddie, whether on-line or at
one of the outstanding ThyCa conferences or workshops, we experience
an instant kinship. The cascade of questions and information exchange
that follows creates a very special bond. We hope that everyone
visiting this site and the MTC e-mail group will experience this
bond as we learn from and support one another.
If you or
someone in your family is coping with MTC, we invite you to join
the MTC e-mail group. Instructions for joining this group can
be found at http://www.thyca.org/email.htm#medullary.
If you would
like to speak with an MTC support person, we encourage you to
contact ThyCa’s Person-To-Person Network at http://www.thyca.org/tppn.htm.
Or you may call the ThyCa toll-free number at 1-877-588-7904.
All too often
MTC patients and their families start their MTC journey with little
or no knowledge of this rare disease. By reading this web site
and communicating with this worldwide group, we can have more
confidence that we are staying informed and, hopefully, one step
ahead of our disease.
MTC is rare and we are labeled as having an “orphan” disease,
we are still very much a part of the greater medical community.
The intriguing science and research surrounding MTC overlaps and
contributes to the knowledge and understanding of other cancers
as well. We hope this MTC site encourages others by helping them
appreciate that MTC is not just a footnote in a medical text book,
but an actively researched disease.
Thyroid Cancer Site was developed by volunteers of ThyCa: Thyroid
Cancer Survivors Association and received input and review from
numerous physician specialists who provide ongoing input and support
to ThyCa’s efforts in education, support, and outreach.
We are grateful
to everyone who has helped develop this site. We ask that everyone
continue to contribute. If you would like to suggest additions
to this web site, please e-mail to firstname.lastname@example.org.
on this site is compiled by and for MTC patients and their families.
While the medical information is reviewed and edited by physician
specialists, it is intended for educational purposes only. It
should not be interpreted as medical advice or directions. Persons
reviewing this information are advised to consult their own health
care professionals for any matters related to their medical care.