Calendar of Events
Low Iodine Cookbook
Patient Packet - Free
Thyroid Cancer Facts
Thyroid Cancer Types/ Stages
Thyroid Cancer Basics Booklet
Papillary/Follicular Thyroid Cancer
Radiation: RAI EBR
Low Iodine Diet
Low Iodine Cookbook
After Receiving RAI
Medullary Thyroid Cancer
Anaplastic Thyroid Cancer
Pediatric Thyroid Cancer
HOW TO HELP
Become a Member
Donate to ThyCa
Give a Tribute Card
Intro for Physicians
files, you need Adobe Acrobat Reader.
JOURNEYS, JANUARY 2006, CONFERENCE NOTES ISSUE
Support and communication
for thyroid cancer survivors and families. A free publication of ThyCa:
Thyroid Cancer Survivors' Association, Inc.
IN THIS ISSUE
from the Editor
As I write this,
2006 is just beginning. It’s time to take stock of the last 12 months
and think about the year ahead.
Of course, taking
stock isn’t relegated to January 1 alone. Birthdays also do the trick.
And not surprisingly, so does a thyroid cancer diagnosis. I particularly
remember one “ah ha!” moment in the midst of my treatment. I decided
that I thought too much about the future. I needed to be more engaged
in the present. I’d always wanted to learn to play the piano. Why
not do it now? I planned to become more physically fit. No sense delaying.
There was little point in putting things off for some amorphous future.
So let’s take
stock: This year, I took things for granted. Another 365 days gone,
and I still can’t play a note on the piano. I have yet to visit continental
Europe, and I worked more than I should have. There’s a list of books
I want to read that only gets longer (though I think that’s a good
I’m still putting
a lot of things off for that amorphous future. And I’ve decided that’s
okay. Thyroid cancer gave me “ah ha!” moments that I wouldn’t trade
back. But six years on, few things make me happier than knowing that
I am once again taking things for granted. Though this year, I really
do plan to start those piano lessons…..
May the New Year
bring you health and happiness.
Conference Overview and Highlights
the 8th International Thyroid Cancer Survivors’ Conference in Denver,
Colorado, on October 21-23, 2005:
- More than 400
thyroid cancer survivors, caregivers, and health care professionals
gathered from 37 states, District of Columbia, Canada, and the Philippines.
ranged from people newly diagnosed to survivors of more than 30
years, from children through seniors, as well as caregivers. Numerous
physicians, nurses, and other medical professionals also attended
for the 3 days to share in the conference experience.
- The 100-plus
sessions included 35 physician presentations and Ask-a-Doctor sessions
about the latest advances in thyroid cancer care and research, including
promising clinical trials. The 22 physician speakers came from the
Cleveland Clinic, University of Colorado Health Sciences Center,
Duke University, University of Florida, University of Texas M.D.
Anderson Cancer Center, Washington University School of Medicine,
and other major centers.
- Featured speakers
also included three pharmacists, a dentist, 5 nurses, a dietitian,
3 attorneys, a psychologist, specialists in complementary approaches
to well-being, survivors of each type of thyroid cancer (papillary,
follicular, medullary, anaplastic, and variants), and caregivers.
Also speaking were Denver 7News Anchor Theresa Marchetta and National
Memory Champion Scott Hagwood, both of whom are thyroid cancer survivors.
- Feedback was
uniformly positive. Sample comments:
- Great job EVERYONE!!!
We just wanted to let you know how much the conference means to
us. We appreciate all the hard work, time and sacrifice by all.
It was really worth it,” wrote an attendee from Illinois.
- This was my
first conference and I am so glad that I went,” wrote a thyroid
cancer survivor from Nevada. “When I was diagnosed 20 years ago,
I felt very alone. Well, I didn't feel alone this weekend. Everyone
(survivors, caregivers, doctors, etc.) was very compassionate.”
- “This conference
has made me look at my disease in a whole new way,” another attendee
- This unique
educational and supportive event is sponsored by ThyCa: Thyroid
Cancer Survivors' Association, Inc. (www.thyca.org) and organized
and run by ThyCa volunteers.
a Big Success
During the Denver
conference weekend, Friday evening’s Dinner/Auction to benefit thyroid
cancer research drew a large attendance. The evening featured inspirational
talks by ThyCa volunteers Jeff Klaas, Bob Legler, and Barbara Gockenbach
Mosley. The evening was a tremendous success, netting more than $23,000
for ThyCa’s research funds to support thyroid cancer research grants
open to investigators who are less than 6 years from completion of
their post-doctoral fellowships and who have never been a principal
investigator on an NIH RO1 or equivalent grant.
You from the 2005 Conference Team
conference team expresses our special thanks to all the conference
speakers, the roundtable leaders, and the wonderful ThyCa volunteers
who helped before and during our 2005 conference.
We also extend
our appreciation to these generous supporters:
- The conference
exhibitors and resource material donors, including the American
Cancer Society, American Thyroid Association, Colorado Cancer Control
Program, Genzyme, Gilda’s Club of Denver, Mental Health Association
of Denver, and National Alliance for Mental Illness Denver Chapter.
- Massage USA
for the free chair massages given during the conference.
- Denver Reiki
Practitioners and Reiki Session Coordinator Betty Solbjor for the
free Reiki sessions for conference attendees.
- Genzyme for
providing representatives to answer questions about insurance coverage
and access to Thyrogen
for the refreshments at our Volunteer Appreciation Reception and
Thank you from
our 2005 Conference Planning Team: Tina Anders, Bryan Benesch, Gary
Bloom, Cathy Bruce, Jody Campbell, Ron Grafman, Jan Halzel, Cheri
Wallace Lindle, Peggy Melton, Pattie Scott, Megan Stendebach, and
to Orlando, Florida on October 27-29 2006 for the 9th International
Thyroid Cancer Survivors' Conference
For details visit
Or e-mail to email@example.com
If you’d like
to volunteer to help with the 2006 conference, or with another ThyCa
service, please visit www.thyca.org/volunteer.htm for more information
and a list of volunteer opportunities.
National Memory Champion Scott Hagwood Shares Tips that Improve Memory
“We tend to think
that we have terrible memories. Actually, they’re extraordinary,”
said Scott Hagwood during the session he led at our 2005 conference
spoke from his own experience. Following his diagnosis with thyroid
cancer in 1999, he learned extensive memory techniques to transform
himself from mediocre student to international memory champion.
At his conference
session, he demonstrated his skills, taking just 82 seconds to memorize
26 cards from a shuffled deck, correctly calling them out as ThyCa
Raleigh, NC, Support Group Facilitator Ann Maddox showed the cards,
one by one, to the attendees.
He also explained
and demonstrated how to use our 3-dimensional spatial sense to improve
our ability to remember facts and instructions. Two more of his memory
- Review what
you’ve just leaned after 1 hour, 1 day, 1 week, and 1 month.
- Learn how to
reduce and manage stress, because stress is the main factor that
His book “Memory
Power” was published in December 2005.
of the Caregiver
(About the author:
Patricia Scott, B.S., R.N., M.B.A., started her nursing/research career
20 years ago. She specialized in women’s and infants’ health care
at the University of Colorado Hospital, Denver, Colorado, until her
husband David was diagnosed with Anaplastic Thyroid Cancer in March
2002. She turned her energy toward learning and researching about
thyroid cancer and became her husband's primary caregiver and advocate,
until his passing on February 28, 2003. Patricia continues to be involved
as a volunteer for ThyCa: Thyroid Cancer Survivors’ Association, Inc.,
supporting and helping survivors, caregivers, and families.)
The word “extraordinary”
comes to my mind, to say the least, whenever I think of a caregiver.
For the most part
you inherit this position. It shows up at your doorstep, sometimes
unannounced due to a series of circumstances. Or you may freely volunteer
for this position.
No matter how
you acquire this position, it will partially or totally change your
Once we’re placed
in this position, for most of us, it totally changes the focus of
our lives. In other words, we put our needs, wants, goals, and dreams
aside, for the needs, wants, goals, and dreams of our loved one.
without even knowing it, become part of that loved one….You eat, sleep,
breathe, and feel every physical and emotional change with that person….You
become that person’s advocate and put your personal needs aside.
(For the full
text of this presentation, visit www.thyca.org and go to the ThyCa
Conference 2005 notes and handouts in the Conferences/Workshops section.)
from Medical Presentations
(The notes below
are a small sample of the notes from the 2005 conference. For further
details on the topics covered, plus many more topics and session handouts,
visit the ThyCa web site. Go to the Conferences/Workshops
section and scroll down to ThyCa 2005.)
Notes are grouped
by topic. Many notes come from more than one session and speaker,
and from several notetakers. Our thanks to the more than 15 volunteers
who submitted their notes. It’s not too late to submit your conference
notes! You can mail a copy to P.O. Box 1545, New York, NY 10159-1545,
fax them to 630-604-6078, or e-mail them to firstname.lastname@example.org.
We will continue to add details to ThyCa’s web site www.thyca.org
The notes presented
below are intended for educational purposes only. They are not intended,
and should not be interpreted, as medical advice or directions of
any kind. Any person reading these notes is strongly advised to consult
their own medical doctor(s) for all matters involving their health
and medical care.)
AND TREATMENT: GENERAL COMMENTS
- There are large
thyroid cancer treatment centers throughout the United States.
- Only a small
fraction of thyroid cancer patients are treated by specialists.
- There's a real
shortage of physicians trained to handle thyroid cancer.
- More than half
of people over age 50 have a thyroid nodule. Most thyroid nodules
are benign, not cancerous.
- The Fine Needle
Aspiration (FNA) takes representative samples from multiple locations.
Biopsies are not as effective as FNA. A core biopsy removes only
a single chunk, and may miss important areas.
- It’s often
helpful to use ultrasound to guide the Fine Needle Aspiration (FNA).
Using ultrasound to guide the needle produces an improvement of
one third to a half.
- Benign is the
most common diagnosis after FNA. Overall, about 10% of nodules are
- Tissue analysis
after surgery: The pathologist determines types, stages, malignancy,
spread, presence of other disease, etc. The pathology report will
state the type and any variant identified. Hurthle cell is a variant
of follicular thyroid cancer (some think it is a separate variety).
Variants of papillary thyroid cancer include tall cell, insular,
- Second Opinions
on Diagnosis: Your endocrinologist and you are the best people to
decide whether a second pathological opinion is needed.
- Adding a central
neck dissection to surgery is now a common step. 30% to 50% of patients
have lymph node metastases. Central neck dissection adds 30 to 60
minutes to the surgery. It’s done through the same incision made
for the thyroidectomy. It may reduce recurrence. It may increase
- The neck has
several "compartments" delineated by muscle and other
structures. When the surgeon removes lymph nodes, an entire compartment
of lymph nodes is removed. The surgeon should not leave some lymph
nodes behind. The body has thousands of lymph nodes.
- Complex Surgery.
Multidisciplinary care is needed when neighboring structures are
Principles. The team needs to agree regarding the extent of disease.
There should be a complete records review plus biopsy confirmation
prior to surgery. There may be a pre-operative laryngoscopy to examine
the larynx. A principle regarding surgery is "less is better."
- Voice disorders
associated with thyroid cancer may have three types of causes: Presurgical
(benign lesions or malignant invasion of the laryngeal nerve or
larynx), surgical (intubation trauma, neural trauma sign as ligation
or stretching or disruption, and intentional sacrifice of the nerve),
and postsurgical (vocal fold trauma/edema or hypothyroidism). Reasons
for voice changes that remain after 6 months include damage to strap
muscles, laryngeal nerve, or superior nerve.
- Voice therapy
through appropriate exercises can be helpful and maximizes medical
treatment before surgical intervention.
- Treatment options
include vocal fold injection with a substance such as gelfoam or
collagen or fat (fat injection can be repeated; the fat is taken
from the body); thyroplasty (can be adjusted, is reversible; its
complications can include migration of the graft and airway compromise);
- Pain is now
considered one of the vital signs.
- Doctors need
to aggressively treat pain, because pain becomes a disease in itself.
Pain reduces autonomy, hinders functioning, reduces quality of life,
and challenges dignity.
- Untreated pain
can also lead to the inability to tolerate the primary therapies.
-Nobody has to live in out-of-control pain. The three steps in the
ladder of pain treatment are:
(1) for low levels: aspirin and other over the counter medications;
anti-depressions, and anti-convulsants;
(2) when pain is out of control, options include opioids (narcotics)
either sustained release or nonsustained release, NSAIDs, and adjuvants;
(3) for refractory pain, the most extreme pain, which occurs in
15-20% of patients with advanced cancer, options include spinal/epidural
opioids, clonidine, local anesthetic, selective nerve blocks, neuroablation
procedures, ketamine, or total sedation.
RESEARCH: BASIC, CLINICAL, TRANSLATIONAL.
- Basic research
focuses on molecular and cell biology, biophysics, pharmacology,
- Clinical research
studies patients. It includes drug trials, clinical outcomes, national
and regional tumor registries, population studies, studies on quality
of life, and studies on diagnosis.
research means going from the lab bench to the patient bedside and
back to the lab.
- Clinical trials
are using new agents to treat advanced thyroid cancer.
- Treat Anaplastic
Thyroid Cancer (ATC) as you would treat a heart attack: immediately.
The diagnosis should be made quickly if ATC is suspected. Doctors
should not say "there's nothing we can do." It helps just
to have the doctor check on the patient on a regular or daily basis.
- Advances have
occurred in recent years in tracheostomy procedures.
- External beam
radiation therapy has advanced and made treatment more precise.
- IMRT can target
the radiation and has really helped treatment.
calls may be the most effective in getting advice; doctors have
both front lines and back lines.
- ATC needs a
team approach; the patient should go to a center where a team works
together on ATC.
- Follow-up for
ATC: PET scans are useful. PET scans should be repeated every 3-4
- For more information,
see the ATC web site (http://www.thyca.org/atc) on ThyCa’s web site:
- Medullary thyroid
cancer patients need long-term follow-up. Lack of monitoring has
proved to be detrimental to their health and longevity.
-Medullary thyroid cancer patients need CT scans and ultrasounds
periodically for follow-up monitoring.
- External beam
radiation has been effective in cases of medullary recurrence. Survival
rate has increased for these patients with EBRT.
(preventive) surgery is now recommended for children shown by direct
DNA analysis to have inherited MEN2A, MEN2B, or Familial medullary
- Sporadic and
hereditary cases of medullary thyroid cancer have the same protein
mutations that allow the pursuit of similar methods for treatment.
Phase 1 clinical trials look at the dosage and safety, Phase 2 trials
look at whether the drug works, and phase 3 trials compare different
drugs and/or different dosages.
- It's difficult
to conduct effective clinical trials given the rarity of medullary
thyroid cancer. Physicians are trying to formulate preventive methods,
including thyroidectomy. Also are attempting to improve regulation
of the production of calcitonin.
- A clinical
trial with ZD6474 is being done to treat patients with locally advanced
metastatic hereditary medullary thyroid cancer. It was well tolerated
in oral doses. Adverse events were generally mild. Bothersome complications
are diarrhea and dehydration.
- Medullary thyroid
cancer patients met to discuss the development of a medullary thyroid
cancer web site to add to the ThyCa web site www.thyca.org, just
as has been done for anaplastic thyroid cancer by the participants
in ThyCa’s Anaplastic Thyroid Cancer E-mail Support Group.
FOLLICULAR AND THEIR VARIANTS
- The last 5
years have changed our concepts of long-term care of papillary and
follicular thyroid cancer.
- With the introduction
of Thyrogen, there also now are new follow-up tools.
- There should
be lifelong surveillance.
the doses of radioiodine used are often smaller (such as 50 millicuries)
than in previous years.
is replacing much of the whole-body scan procedures when only the
neck area is of concern.
- A whole-body
scan is needed to find distant metastases. Distant metastases show
up on a post-ablation whole body scan. Also, Thyrogen can be used
to artificially stimulate thyroid cells for a short time to get
Thyroglobulin measurements that are more accurate than when the
TSH is suppressed.
and stimulated Thyroglobulin measurements are better than a whole
body scan for detecting disease in the neck. If free of disease,
the patient should have a yearly Thyroglobulin measurement. If there
is any detectable Thyroglobulin, then ultrasound should be done
also. For patients who are TSH-suppressed and high-risk, in general,
do TSH-stimulated Thyroglobulin once a year.
- Standard dosage
of radioiodine for ablation has been reduced to 50 millicuries from
is not free of risks. This must be considered, especially in patients
at low risk of persistent or recurrent thyroid cancer. Even when
only given 100 millicuries of radioiodine, 3 per 10,000 can be at
risk of leukemia. There's a linear dose relationship to secondary
- Secondary malignancies
are a concern when the dosage of radioiodine is 600-800 millicuries.
If a patient receives more than 500 millicuries of RAI, there are
higher rates of bladder, colon, breast, and parotid cancers in addition
to the added risk of leukemia
- Which patients
should receive RAI? According to the American Thyroid Association
guidelines, all patients with Stages III and IV disease, most patients
with Stage II, and selected patients with Stage I. For patients
with a solitary tumor less than 1 cm to 1.5 cm, radioiodine is of
remnant ablation is recommended by the American Thyroid Association
(Thyrogen is approved for use in testing but is not yet approved
by the U.S. Food and Drug Administration for use in ablation in
the USA); the outcome is equal to using withdrawal from thyroid
- The American
Thyroid Association also recommends Thyrogen if the patient has
other medical issues that make hypothyroidism a risk, or if delayed
treatment might be deleterious, or if withdrawal is unable to raise
- ATA guidelines
recommend the low-iodine diet, which should be under 50 micrograms
(mcg) of iodine per day, to increase the effectiveness of the RAI
- Urine iodine
measurement can determine whether patient’s iodine intake could
interfere with RAI.
- ATA recommends
1-2 weeks on the diet; some specialists recommend 2 weeks, especially
if given Thyrogen, and also recommend skipping thyroid hormone 2
days before and 2 days after RAI.
- To stay below
50 mcg per day: Choose foods low in iodine (fresh fruits, fresh
vegetables, unsalted nuts and seeds). In moderation, you may eat
meat, and breads and cereals. Select foods without iodized salt
or sea salt. Avoid seafood, dairy, egg yolks, foods with red dye
#3, and processed and fast foods. For more information visit www.thyca.org
- Wait for 3
months after radioactive iodine to check Thyroglobulin.
- Using Thyrogen
(rhTSH) with the blood test reduces the patient's exposure to radiation.
- A doubling
of the Thyroglobulin over time indicates disease. Any time there
is a 100% increase in Thyrogobulin, it is time for further testing.
The time frame of this rising does not matter. What is important
is the 100% value increase. This is when it's time for an ultrasound,
CT scan, or PET scan to help determine the cause of this rising
- A stimulated
Thyroglobulin (with TSH raised by Thyrogen or by withdrawal from
thyroid hormone) over 2 is cause for more studies, but not necessarily
for more treatment.
- Even with an
undetectable Thyroglobulin, Doppler ultrasound can sometimes still
- In a patient
with Tg Antibodies, if the Tg Antibody level falls over time, the
patient is probably disease-free.
- An ultrasound
should be one of the first tests in monitoring a patient for recurrence,
especially in patients where TgAntibodies are an issue.
is much more sensitive than a diagnostic radioiodine whole-body
advantages include its low cost, that it doesn't require radiation,
and that the clinician can view the tumor in real time.
- The device
needs to be a Power Doppler and Color Doppler in order for the entire
spectrum to be seen properly. Doppler ultrasound detects the movement
of blood around tumors. Increased blood flow can be a strong marker
for a tumor.
- The scanning
procedure should take at least 45 minutes in order to be thorough.
- A typical protocol
is to perform ultrasound scans at 6 months and 12 months after surgery,
and then annually for at least 3 to 5 years depending on the risk
for recurrent disease. In addition to ultrasound, Thyroglobulin
measurements (by blood test) should also be taken regularly.
- The average
ultrasonography technician may be very good at other ultrasounds,
but requires special training for thyroid examination.
plus ultrasound is better than Thyroglobulin alone, because Thyroglobulin
can be undetectable with a small positive lymph node.
in Papillary and Follicular and Variants\
- The American
Thyroid Association recommends a gradation of TSH suppression, not
one TSH suppression level for all patients. The reason is to rule
out the worst possibilities: osteoporosis is worse than thyroid
cancer. If suppressed below 0.1, there also is an added risk of
atrial fibrillation, whereas at TSH of 0.2 to 0.3, the patient is
free of risk. If a patient is over age 60, suppression to 0.1 triples
the risk of atrial fibrillation.
- About 85% of
patients can be kept at 0.5 rather than 0.1. If a patient is "clean"
of thyroid cancer (disease free), the TSH can be kept at or just
below 0.5. However, high-risk patients need further TSH suppression.
About 15% of patients are high risk and need the lower TSH level.
Children and Adolescents
with Papillary or Follicular Thyroid Cancer
- Pediatric thyroid
cancer often presents at a more advanced stage than adult thyroid
cancer. Up to 80% of children and adolescents with papillary and
follicular have lymph node metastases. Up to 20% can have lung metastases.
However, the prognosis is still good. Even when there is a recurrence,
the outcomes for children and adolescents are very good.
- Because pediatric
thyroid cancer has an excellent survival rate, the treatment goal
must be to achieve the highest success rate with the lowest morbidity
rate to offset the long-term effects of treatment.
- Treatment is
similar to that for adults. Doctors tend to use lower doses of radioiodine
than for adults, with doses given a year apart or more.
- When becoming
hypothyroid for a RAI scan or treatment, or being hypothyroid in
general, they may not show any symptoms. They may be fully active
despite being hypothyroid.
- The main follow-up
marker for papillary or follicular thyroid cancer in children and
adolescents is Thyroglobulin.
Association Guidelines for Differentiated Thyroid Cancer
- The guidelines
will be published in 2006.
- The guidelines
committee of thyroid cancer experts looked at research literature
and used a process similar to the process used in the NIH Consensus
Development Conferences to determine whether the evidence was good,
fair, or insufficient.
- The recommendations
range from A (strongly recommend for) to F (strongly recommend against)
and I (no recommendation: not enough data).
(Follow-up notes on the Guidelines:
(1) The 10 members of the ATA Guidelines Task Force included 5 ThyCa
medical advisors: Bryan R. Haugen, M.D., Stephanie L. Lee, M.D.,
Ph.D., Ernest L. Mazzaferri, M.D., Steven I. Sherman, M.D., and
R. Michael Tuttle, M.D., as well as 3 additional ThyCa conference
and workshop speakers: David S. Cooper, M.D., Susan J. Mandel, M.D.,
and Richard L. Kloos, M.D.)
(2) The guidelines are being published in the February 2006 issue
of the ATA journal Thyroid. In January they were published on the
web site of the journal’s publisher, at this location: http://www.liebertonline.com/doi/pdf/10.1089/thy.2006.16.ft-1?cookieSet=1)
ABOUT PATIENT-DOCTOR RELATIONSHIPS
- You as the
patient are Number One. Each patient has unique circumstances, stories,
and experience. Ask questions, ask questions, ask questions!
- Keep your own
file with all your medical records and test results in case you
move or change doctors.
- Doctors need
to pay attention to the patient and not just the scans. They also
need to pay attention to the patient’s risk level.
- Doctors are
responsible for professionalism, including always doing what is
right for the patient, making sure that information is presented,
and helping patients cope with the system.
methods include office visits, telephone calls (less useful due
to time issues), written communication, and e-mail.
- The C word
is stressful; patients need to learn how to cope with it after hearing
- Make sure all
your questions are answered before you leave the doctor's office.
- If you're not
satisfied with your current physician, go somewhere else.
- Free One-Day
Spring Workshops Planned. The Midwest Thyroid Cancer Survivors’Workshop
will take place in St. Louis, Missouri, on Saturday, April 22, 2006.
The Mid-Atlantic Workshop will take place in the Maryland/Virginia/DC
area. ThyCa volunteers are also planning workshops in other locations.
Visit our web site and go to the Conferences/Workshops and Calendar
sections for more information.
- More than 60
ThyCa Local Support Groups meet in 35 states coast to coast. Each
group has its own web page. Plan to attend a meeting in 2006, or
contact the volunteer facilitator nearest you, to become part of
your local network of thyroid cancer support. Or, if you’d like
help in starting a group, contact our volunteer Support Groups Coordinator
Sara Gorrell Brenner. For the complete current list of support groups
and help in starting a group, visit http://www.thyca.org/sg/local.htm
- For one-to-one
communication and support with a ThyCa volunteer matched with the
same diagnosis as you have, contact our Person-To-Person Network.
Our TPPN Coordinator Peggy Melton will connect you with a ThyCa
volunteer who will be in communication with you.
- Thank you to
our financial supporters during 2005.
- ThyCa’s members
and individual donors
- The many volunteers
who organized special Rally for Research events
- The following
- King Pharmaceuticals
- The grants
from organizations are unrestricted educational grants, and the
donors are not involved in any decisions about the content of our
programs and publications.
Karen! We’re proud to announce that Karen Ferguson of South Carolina
(near Charlotte, NC) has been named ThyCa Board Member Emeritus.
Karen is one of ThyCa’s co-founders and is the ThyCa volunteer who
first reached out over the Internet nearly 11 years ago in the spring
1995, to bring thyroid cancer survivors together for the first time.
She has been facilitating Monday evening online chats since the
fall of 1995. She also facilitates ThyCa Charlotte, NC and volunteers
for our Toll-Free Number and our Membership Committee. Congratulations
and thank you, Karen!
- Research Grants
for 2006-2007. Two new Thyroid Cancer Research Grants for 2006-2007
will be sponsored by ThyCa: Thyroid Cancer Survivors’ Association.
ThyCa’s research grants are open to thyroid cancer researchers and
institutions worldwide. We proudly awarded our first research grant
in 2003. Our web site has more details about our Rally for Research,
our past grant awards, and our 2006-2007 grants.
- Web Site continues
to grow! It has more than 500 pages of thyroid cancer information
and received more than 200,000 hits each month during 2005. We thank
the dozens of specialists, including the 22 members of our Medical
Advisory Council and numerous other physicians and other specialists,
who provide ongoing review and input for the web site. The web site
is the only resource that receives this ongoing review. We thank
also the many volunteers who continue to contribute material for
the web site. ThyCa’s web site is expanded every week. Visit it
often for the latest information: www.thyca.org.
about This Newsletter and ThyCa
The articles in
this newsletter represent the opinions of their authors and are not
official positions of ThyCa: Thyroid Cancer Survivors' Association,
Inc. The articles by laypeople do not offer medical advice, as the
authors are not doctors and have no medical training. Articles by
physicians are educational and not intended to offer medical advice,
as physicians cannot diagnose through the Internet. If you have medical
questions, please consult with your physician.
Cancer Survivors' Association, Inc. (www.thyca.org) is an all-volunteer
nonprofit 501(c)(3) service organization advised by nationally recognized
thyroid cancer specialists and dedicated to support, education, communication,
awareness for early detection, and thyroid cancer research fundraising
and research grants.
year ThyCa offers free resources, including education through the
web site, our low-iodine cookbook downloadable from the web site,
several e-mail support groups, local support groups coast to coast,
the person-to-person network for one-to-one support, newsletters,
and the survivors' toll-free telephone number.
2006 ThyCa: Thyroid Cancer Survivors' Association, Inc. (www.thyca.org).
We encourage you to send this newsletter to your family and friends.
For permission to reprint in another electronic or print publication,
please contact ThyCa.
Open Invitation from ThyCa
thyroid cancer survivors, families, and friends to tell their friends
and relatives about ThyCa’s free year-round support services and publications,
including our award-winning educational web site, our free thyroid
cancer awareness brochures, and our conference and other special events.
Your gifts of
your time and your financial support help ThyCa sustain our support
services, our education and outreach programs, and the continuing
expansion of our research grants to support our dream of a future
free of thyroid cancer. Visit our web site www.thyca.org to find out
ways you can help.
Us Help Each Other
We want your comments
on this newsletter! Do you like it? What would you like us to print?
Send your comments to email@example.com
or ThyCa: Thyroid Cancer Survivors' Association, Inc. P.O. Box 1545,
New York, NY 10159-1545
Serving the Public Since 1995